Tag Archives: Adverse Prenatal Diagnosis

Infant and Pregnancy Loss

The Church calls children “the supreme gift of marriage” (Gaudium et spes, n. 50). Losing a baby, whether through miscarriage or as an infant, is one of the deepest forms of grief and pain that a couple may endure.

Unfortunately, many couples often suffer without any support, as in the case when a couple loses a child before sharing that they were pregnant with others, or insufficient support because family and friends are unsure of what to say or do because of the difficulty and often suddenness of losing one so young.

If you or a loved one has suffered the loss of a child during pregnancy or infancy, know that help and resources are available.

For Your Marriage Resources

Catholic Ministries Supporting Grieving Parents and Families

  • Behold Your Child Developed by the Archdiocese of Dubuque to help provide hope and healing for parents and families who have experienced a life-limiting prenatal diagnosis, miscarriage, stillbirth, or infant death
  • Catholic Miscarriage Support Practical and spiritual support for Catholics who have lost a child to miscarriage
  • Elizabeth Ministry International Offers hope, help, and healing on issues related to relationships, sexuality, and childbearing
  • Emmaus Ministry for Grieving Parents Offers spiritual support to parents who have lost a child at any age, by any cause, no matter how long ago
  • Heaven’s Gain Ministries For the physical, emotional, and spiritual needs of families experiencing pregnancy loss: before, during, and after the delivery of their precious baby
  • Morning Light Ministry Guides bereaved parents from the darkness of grief toward His Morning Light
  • Red Bird Ministries Guides individuals and couples through the complexity and trauma that happens with the loss of a child from pregnancy through adulthood

A Bittersweet Bucket List

Usually when people say that a goal is on their “bucket list” it means that sometime in the as-yet-unplanned, perhaps even distant, future, they’ll hopefully get around to doing something they always wanted to do before they die: memory-making, picture-taking adventures like hang-gliding, traveling to an exotic land, or even writing one’s first novel.

But today I learned about a very different bucket list. Dan and Jenna Haley, young, faith-filled parents from Philadelphia, are expecting their first-born child next month. In April, they learned that their son, Shane Michael, has anencephaly which means that he is missing parts of his brain and possibly skull, and so is not expected to live long. Depending on the severity of his condition, doctors say he may survive as little as a few hours or may live over a year. To celebrate him during Jenna’s pregnancy, they crafted a bucket list of their own favorite things to do. In a local news story, Dan said: “Most families wait until their baby is born to start making memories and traveling to places with them. We…knew that our time with our son could be very limited, so we wanted to make the most of the time that we had with him.”

At the time of this writing, Shane Michael is 35 weeks old in Jenna’s womb, and has been with his parents to many of the places that were significant to them as children: zoos, Delaware beaches, and an aquarium. He’s ridden the famous Wildwood, NJ, ferris wheel, attended family baseball games, and been with his praying parents at the shrines of St. John Neumann and St. Rita. He’s “met” the Phillies and the Flyers, enjoyed Geno’s cheesesteaks, and made a field trip up to New York City, where they visited the Statue of Liberty and Empire State Building, among other sites. He and his parents were also honored by friends and family members with a “shower of love” – a different kind of baby shower surrounding these courageous parents with encouragement and support, as well as affection for their little, severely disabled boy.

The Haleys have openly shared their adventures with over 100,000 followers on their “Prayers for Shane” Facebook page. They write: “We are asking for your prayers and support and that God grants us as much time as possible with our beautiful son. Shane has already proven to us that each day must be lived to the fullest and that is exactly what our little family is doing.”

What an incredible witness to the dignity of life! This beautiful couple resisted not only any pressure to abort Shane because of his medical condition, but also the temptation to hide him from the world. Their story shows that every person deserves to be loved. In sharing their bittersweet journey with others, they have shared their son Shane Michael with a huge community who, in turn, have rallied around the couple in their joys, sorrows, and fears. May their story be an encouragement to other families facing adverse prenatal diagnoses.

About the author
Deirdre A. McQuade is Assistant Director for Policy & Communications at the Secretariat of Pro-Life Activities, U.S. Conference of Catholic Bishops. This article originally appeared in the Life Issues Forum and is reposted by permission.

Little Miracles

Andrew and Anna, married for nearly 10 years, face one of the biggest challenges that any marriage can confront. In June 2006 their daughter Rose was born with DiGeorge’s syndrome, a serious genetic disorder caused by the deletion of a small part of a chromosome. Because the condition is rare – 1 in 4,000 – Rose’s prognosis is uncertain. Right now doctors are debating how to treat her heart and gastrointestinal abnormalities.

In the meantime, the couple’s life has turned upside down. They try to maintain some normalcy for their other children, ages 5 and 3 ½, even as they struggle to meet Rose’s medical needs. Constant medical procedures and midnight wake-up calls to give Rose her medication put a lot of strain on the family. Tempers get short and “the small stuff creeps up.” Much-needed breaks, such as leaving the children with a teenage babysitter so that the couple can enjoy an evening out, have become impossible. Andrew and Anna know that marriages break up over these kinds of difficulties, and they are determined not to let that happen.

Friends, family, and the Secular Franciscan Order offer understanding and practical support. Andrew finds that Pope John Paul II’s encyclical, The Christian Meaning of Human Suffering is helpful for people going through a situation like theirs. Andrew and Anna have a special devotion to Saint Teresa of Calcutta.

In the face of such uncertainty, the graces of marriage keep Andrew and Anna going. They have learned to celebrate the “little miracles.” “Rose came home,” said Andrew. He and Anna believe that God entrusted Rose to them, and they know that God will be with them in whatever lies ahead.